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My latest D4Dementia blog
Wonderful thank you @CruseSupport @bethyb1886 and the @meetmacintyre team 💜🤗💜 https://twitter.com/healthld/status/1543952520883625992
Great to see this blog live, thank you @CruseSupport (& @bethyb1886) 💜 https://twitter.com/CruseSupport/status/1543882425163517953
Great to see this blog live, thank you @CruseSupport (& @bethyb1886) 💜 https://twitter.com/CruseSupport/status/1543882425163517953
In the past, a common view was that a person with a learning disability won’t be affected by grief. 💜
At @meetmacintyre, their Dying to Talk Project aims to change this narrative and support people with a learning disability who are bereaved.
Read more:
https://www.cruse.org.uk/about/blog/supporting-people-with-learning-disabilities-through-grief-and-bereavement
#AlzChat 3pmEST/8pmUK Topic today: Social prescribing & community centered services in dementia care @creativitycare
@nursesKidONE
@AlzJoyThruTears
@SrCareCorner
@bethyb1886
@UnicornSpark
@Mycarematters #WorldWellbeingWeek
@artsaging
@KellyBMSunshine
Should everyone have an 'end-of-life' plan?
This short film would make a wonderful conversation starter about the benefits of planning ahead.
https://www.bbc.co.uk/ideas/videos/should-everyone-have-an-end-of-life-plan/p099x2yh
Calling all #gardens, #museums and #galleries. This is the perfect way to learn more abt sharing your collections with people living in #CareHomes across the country. Join this zoom on Wed 29th to find out more. @ViCommunities #care #Arts #inclusive #connections @ArmchairGallery https://twitter.com/ViCommunities/status/1539197996260286465
Would you like to connect with older people who live in care homes?
Join us for our free live Zoom event on Weds 29 June at 11am (45 mins)
https://www.eventbrite.co.uk/e/connecting-with-new-older-audiences-tickets-370386204107
It's aimed at #gardens, #museums and #galleries who'd like to hear more about how to reach people in #carehomes
#AlzChat 3pmEST/8pmUK Topic today: Transport and travel in dementia care @creativitycare
@nursesKidONE
@AlzJoyThruTears
@SrCareCorner
@bethyb1886
@UnicornSpark
@Mycarematters
@artsaging
@KellyBMSunshine
Thank you @bethyb1886 https://twitter.com/bethyb1886/status/1540589388110958594
Fantastic to have co-facilitated this event! Thank you @HealthLD @NicolaP321 @Furniss8Rachel #teamworkmakesthedreamwork https://twitter.com/HealthLD/status/1540588911155716096
Fantastic to have co-facilitated this event! Thank you @HealthLD @NicolaP321 @Furniss8Rachel #teamworkmakesthedreamwork
Reflecting on our #DyingtoTalk Roundtable event this week for people supported, families and staff. So many great conversations and positive feedback. We are planning a blog to tell the story of the day too, so watch this space...!
#death #dying #endoflife #makingadifference
What a brilliant day with @bethyb1886 @Furniss8Rachel spending time with @meetmacintyre staff teams , families and people we support to support conversations and planning for the future #DyingtoTalk #BetterTogether 💜@HealthLD
Thank you for your part in #10yearsofbmedementia @LeedsPlayhouse @PBhealthonline @sikhforgiveness @SikhYourMind @ClaireFordArt @justmanuka @satnamvocalist @maggie_deru @_nickytaylor @drsmckay @RanmalieJ @LeedsMuseums @thackraymuseum @AlexIrvineLeeds @MinotiParikh @StGemmasKerry
@NicolaP321 @HealthLD @meetmacintyre @bethyb1886 @Furniss8Rachel Brilliant work Nicola such an important subject to talk about 🙌🏻
Every Wednesday throughout 2022, @NAPAlivinglife #YearofCreativity, we are sharing creative activity suggestions developed in care settings in partnership with artists and arts organisations,
You can find them all here: https://bit.ly/3HIsPvi.
#ArtsinEveryCareHome
Spending today in Worcester with @HealthLD #DyingToTalk @NicolaP321 @Furniss8Rachel
Celebrating #10yearsofbmedementia 🎉 Thank you for your part in our journey 💛@DiverseAlz @network_race @HWLeeds @crleeds @LeedsOPF @leedsirish @InvolvingYou @LCCDayOps_BAME_ @MyForumCentral @IRememberBetter @tide_carers @Innov_Dementia @UoLCommunity @LCILeeds #bmedementia
Off to Worcester today to support the fab @HealthLD team with our #DyingtoTalk Roundtable for @MacFamilies, people supported & @meetmacintyre staff. Talking about & planning for #endoflife care with @NicolaP321 & @Furniss8Rachel
https://www.macintyrecharity.org/events/dying-to-talk-round-table-workshop-worcester/
Looking forward to seeing you @NicolaP321, & meeting you properly @Furniss8Rachel 🎉
Off to be with a fantastic bunch of people today all #DyingtoTalk at our @HealthLD round table workshop led by our @meetmacintyre friend @bethyb1886 ,can’t wait to see you in person 💜@Furniss8Rachel
@jemifraser @nursesKidONE @artsaging @bethyb1886 @songhaven_uk @Mycarematters @AndyDetective @PlaylistforLife @AlzJoyThruTears @helenfindlay and ALL listening/ Contributing/ RT-ing #AlzChat TY. Back Mon 3pmEST/8pmUK new topic Have a fab week @IRememberBetter @creativitycare
What a fabulous story by @bethyb1886 about music and her experience of taking a show into care homes. http://d4dementia.com/2012/05/singing-from-the-same-hymn-sheet.html. Written 10 yrs ago (and still we need to help care homes play music that suits people whose home it is). #AlzChat
@bethyb1886 @IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @UnicornSpark @Mycarematters @KellyBMSunshine This is a wonderful piece, thank you for sharing. Hopefully the tide is turning and more operators are starting to understand the incredible benefits of music- and other art forms- for their residents!
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @Mycarematters @KellyBMSunshine Looking forward to today's topic. Music is just an incredible tool for helping those living with dementia find joy and connect with others ❤️ #MusicForAll #MusicAndMemory
#AlzChat 3pmEST/8pmUK Topic today: The power of music in dementia care @creativitycare
@nursesKidONE
@AlzJoyThruTears
@SrCareCorner
@bethyb1886
@UnicornSpark
@Mycarematters
@artsaging
@KellyBMSunshine #MakeMusicDay #WorldMusicDay
Did all I could for my dad yesterday - a tidy up & some new plants. Happy #FathersDay to all dads, & thinking especially of everyone like me who can’t give their dad a hug today ❤️
@bethyb1886 Thank you Beth xxx
@bethyb1886 @tonyhusband1 @awad_gina @LEAD_Coalition @KateLeeCEO @Dembkclub @IMcMillan @Tony_Robinson @piponthecommons @Vicky_McClure @IDEALStudyTweet @YoungDemNetwork @CultureDementia @AlzheimersSupp @Artsincarehomes @FamilyCareTrust Gosh, that’s a long time. I’m so sorry 😞
@bethyb1886 @AGoodDeath @VODGmembership @BILD_tweets @LearningDisEng @PCPLDnetwork @TuffreyWijne @DyingMatters @MarieCurieEOLC @ARCEngland @MacFamilies @goodgrieftrust @jimgblair @hospiceuk @uk_beyondwords @Ashgate_Hospice
You may be interested in this!
https://twitter.com/bethyb1886/status/1537053082294566913?s=20&t=9bxuLCgUwzskgbZaI0f0JQ
"We want to normalise involving people with #learningdisabilities in creating their #endoflife plans, & alongside this support their families through this process too."
Read the guest blog I wrote for @AGoodDeath on @HealthLD's #DyingtoTalk Project
https://medium.com/death-dying-and-digital/planning-end-of-life-care-with-people-who-have-learning-disabilities-f097d0855f
"We want to normalise involving people with #learningdisabilities in creating their #endoflife plans, & alongside this support their families through this process too."
Read the guest blog I wrote for @AGoodDeath on @HealthLD's #DyingtoTalk Project
https://medium.com/death-dying-and-digital/planning-end-of-life-care-with-people-who-have-learning-disabilities-f097d0855f
Isn’t it a great blog post by @bethyb1886
Thank you for sharing ⭐️ https://twitter.com/IRememberBetter/status/1536425671840481281
#AlzChat
Fab blog post "Carers we are United" by @bethyb1886 featuring new book by @awad_gina
& @tonyhusband1 https://d4dementia.com/2022/06/carers-we-are-united.html
For the first time @DemCarersCount is carrying out a survey of family dementia carers to find out what caring means to you, what you find difficult and what you think needs to change.
Tell us what you think: https://dementiacarers.org.uk/survey/
It is a great post from @bethyb1886 as always
Reading how Beth has related to the family stories is so special & bode well for it being a universally relatable read 💜 https://twitter.com/IRememberBetter/status/1536425671840481281
#AlzChat
Fab blog post "Carers we are United" by @bethyb1886 featuring new book by @awad_gina
& @tonyhusband1 https://d4dementia.com/2022/06/carers-we-are-united.html
#AlzChat
Fab blog post "Carers we are United" by @bethyb1886 featuring new book by @awad_gina
& @tonyhusband1 https://d4dementia.com/2022/06/carers-we-are-united.html
@Dementiawho @AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes @YSManson1 So….Here’s where we are right now with the 3 essentials regarding #dementia care I promise all comments will at the very least feature in a care model review with staff in our care homes. The word most common so far is RELATIONSHIP which validates what I feel matters most🤔
'We were enjoying the moment, with the warmth of the sun on our faces, only birdsong and the rustle of the trees to listen to'
@bethyb1886 describes how being #outdoors with her dad - who lived with #dementia - was powerful for them both @DemCarersCount
https://nrtimes.co.uk/dementia-and-the-joy-of-being-outdoors-dcc/
Thrilled you love it as much as @tonyhusband1 and I do Beth 💜 https://twitter.com/bethyb1886/status/1535940978623795200
"Bravo to Gina and Tony for a profound, personal and very emotional book."
Read my D4Dementia blog with quotes from @awad_gina & @tonyhusband1's book 'United - Caring for our loved ones living with dementia'
http://d4dementia.com/2022/06/carers-we-are-united.html
#CarersWeek2022 #carers #families
Absolutely, & I’d add to @LEAD_Coalition’s graphic with this one from @TheLancet which is my go-to when thinking about risk reduction. Note that hearing loss is the biggest modifiable risk factor for #dementia
It’s possible to help yourself reduce the risks of dementia.. laid out neatly here . Please share @IMcMillan @marcrileydj @piponthecommons @awad_gina @helpstampoutalz @WendyPMitchell @bethyb1886 @Tony_Robinson https://twitter.com/LEAD_Coalition/status/1528085969643110405
@bethyb1886 @DemCarersCount Thank you very much for sharing this Beth. It’s a lovely insight into your relationship with your Dad and offers some real positivity for anyone going through similar.
@bethyb1886 @awad_gina Thankyou Beth xx
@Justacarehomeg1 @AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @geoffreydcox @devoncarehomes @YSManson1 Now we’re generating some really powerful debating points. Excellent Kirsty It’s clear there are lots of so many important things to aspire to & work to get right 🤩🤩🤩😍
@CoxonGeorge @AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @geoffreydcox @devoncarehomes @YSManson1 ➡️Seeing risk as welcome in an active, fulfilling life
➡️Ensuring diagnosis is a gateway not a barrier to health and social care
➡️Making communities more aware of the needs of those living with dementia. People power to action change needs knowledge
@AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes @YSManson1 I know how impossible it is to limit priorities to only 3 but my short list of 9 here are equally but a few of what I see as really important 😬😬. I keep changing my mind based on the excellent thoughts of others 💡kindness 💡laughter💡 love 🤔 @welshcake39
@CoxonGeorge @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes @YSManson1 ✅being open to learning - learning about individuals, their contexts, their communities with all those nuances ✅ building trust with relationships -people matter all people ✅ be creative thinking outside the box of diagnosis to support people to thrive ♥️
@Dementiawho @AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes @YSManson1 Brilliant. Thank you 😍. @lucypgeridoc @TOMNetworkUK @AdamDPurnell @welshcake39 @lucy_bull @louisebrady17
@YSManson1 @bethyb1886 @AlyMcKechnie @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes I think there’s a consensus statement emerging🤩 All contributions will definitely feature in the piece Yvonne & I will craft-So important we share our ideas to do better for those living with a dementia & helping loved ones & those, like me & my staff, refresh our care approach
@CoxonGeorge @AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes @YSManson1 2. should be inclusive regardless of race, gender, sexual orientation etc
3. Be realistic - for me as a caregiver, perfection is overrated, just do it to the best quality you can
(long winded as ever)
@CoxonGeorge @AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes @YSManson1 That's kind to be included in this, I think you're asking us so like @bethyb1886 by top 3
Dementia Care
1. isn't static, constantly changing & we're adapting to it, rethinking our processes to change with it to improve the care for our loved one (or in your case your clients)
@bethyb1886 @AlyMcKechnie @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes @YSManson1 I knew I could rely on you Beth to help me out 😇
"Bravo to Gina and Tony for a profound, personal and very emotional book."
Read my D4Dementia blog with quotes from @awad_gina & @tonyhusband1's book 'United - Caring for our loved ones living with dementia'
http://d4dementia.com/2022/06/carers-we-are-united.html
#CarersWeek2022 #carers #families
"Since my dad died, one of the biggest elements of #carer support I’ve championed is the need for people to recognise their role."
Read my @CareChoicesLtd #CarersWeek2022 blog https://www.carechoices.co.uk/being-visible-valued-and-supported-as-an-unpaid-carer/ #carers #families
"I’d often sit in the garden with my dad holding hands as he napped in his panama hat, close my eyes myself, and almost forget dad had #dementia for a while."
Read my guest blog for @DemCarersCount https://dementiacarers.org.uk/blog/the-joy-of-being-outdoors/ #CarersWeek2022 #carers #families
Superb blog by the prolific and inspiring Beth 💜 https://twitter.com/bethyb1886/status/1535530513724841984
👀Some weekend #CarersWeek2022 reading for you👀
My D4Dementia blog all about @awad_gina & @tonyhusband1's book, 'United - Caring for our loved ones living with #dementia'
#carers #families
http://d4dementia.com/2022/06/carers-we-are-united.html
@bethyb1886 @CoxonGeorge @AlyMcKechnie @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes very similar to mine Beth
✅Brain health promotion
✅Relationship centred care (relationships are so important)
✅Shaping research and innovation through listening to all voices and supporting choice
2- what are the 3 most important priorities in dementia care 🤔🤔🤔. I’ve said my 3 essentials will undoubtedly gain more votes than Yvonne’s So please help What have I done !!😬😬😬😬. I’m in real trouble making such a wild & reckless error !
1-@AlyMcKechnie @bethyb1886 @awad_gina @WendyPMitchell @KateLeeCEO @Dementiawho @Innov_Dementia @DementiaVoices @Justacarehomeg1 @geoffreydcox @devoncarehomes You are some of my best & favourite #dementia inspirers & I need your help😬-I’ve just challenged @YSManson1 to a duel >
Loved it xx https://twitter.com/bethyb1886/status/1535530513724841984
👀Some weekend #CarersWeek2022 reading for you👀
My D4Dementia blog all about @awad_gina & @tonyhusband1's book, 'United - Caring for our loved ones living with #dementia'
#carers #families
http://d4dementia.com/2022/06/carers-we-are-united.html
👀Some weekend #CarersWeek2022 reading for you👀
My D4Dementia blog all about @awad_gina & @tonyhusband1's book, 'United - Caring for our loved ones living with #dementia'
#carers #families
http://d4dementia.com/2022/06/carers-we-are-united.html
👀Some weekend #CarersWeek2022 reading for you👀
My guest blog for @CareChoicesLtd, all about being visible, valued and supported as a family #carer
https://www.carechoices.co.uk/being-visible-valued-and-supported-as-an-unpaid-carer/
#carers #families
cc: @carersweek @CarersUK @CarersTrust @jo_dovey
👀Some weekend #CarersWeek2022 reading for you👀
My @DemCarersCount guest blog, all about getting outside with a loved one who has #dementia
https://dementiacarers.org.uk/blog/the-joy-of-being-outdoors/
#carers #families
cc: @yshotts
@bethyb1886 Thank you very much - so great to get such nice feedback & to hear our posts are useful.
Thank you @bethyb1886 for all
of your guidance and support! https://twitter.com/meetmacintyre/status/1534920647297667072
#MacIntyre’s Consultant for the #DyingtoTalk Project @bethyb1886 explains how this project is empowering people with learning disabilities to have choice and control over their end of life care @AGoodDeath @HealthLD
To read this blog: http://bit.ly/3H5FYhO
#EOLC #Charity
🥁Drum roll🥁
We are delighted to share our latest #DyingtoTalk guest blog, published by @AGoodDeath & written by @bethyb1886. It's all about how we are supporting people with #learningdisabilities to make #endoflife plans.
Do read & RT👇🏼
https://medium.com/death-dying-and-digital/planning-end-of-life-care-with-people-who-have-learning-disabilities-f097d0855f
TY @_zachmoss
#MacIntyre’s Consultant for the #DyingtoTalk Project @bethyb1886 explains how this project is empowering people with learning disabilities to have choice and control over their end of life care @AGoodDeath @HealthLD
To read this blog: http://bit.ly/3H5FYhO
#EOLC #Charity