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My latest D4Dementia blog
@bethyb1886 @KateLeeCEO Me too x
If you want to know more about Lewy Body dementia, listen to these 2 podcasts @lbsorg @alzheimerssoc @3NDWG
@lbsorg has launched a new #website and #podcast to help to communicate more clearly about the condition with people living with #dementia, families and carers, researchers and health and care professionals: https://www.lewybody.org/
@ARCEngland @meetmacintyre @HealthLD @bethyb1886 @TheWags2023 Isn’t it great … what we do , needs to become the normal. The importance of hearing from lived experiences makes training so much more valuable and powerful 💜#proud #teamworkmakesthedreamwork #LearningDisabilites #Autism 💜
@bethyb1886 @RCSLT Thanks Beth, your blog was one of the first I'd read in my dysphagia research and reassured me that this wasn't something to fear as much as I was, so thank you for your blog.
@bethyb1886 @carers_research @nigel_sparrow @gailscottspicer I know! Was such a good project! I’m at a virtual lecture Mary is giving, and happened to look at her feed!
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @RakheeLb Telling stories about one's life can be an amazing way to connect with others, serves as a form of reminiscence therapy, and can be very empowering as one can help others learn from your own experiences! #AlzChat
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Reminiscence Network Northern Ireland. Published date: Unknown. Best Practice Manual Creative Reminiscence and Life Story Work - Reminiscence therapy and life story work: Responding to Painful Memories, Dementia and Reality Orientation etc
https://www.ageuk.org.uk/globalassets/age-ni/documents/publications/best_practice_manual_creative_reminiscence_and_life_story_work.pdf
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Courtesy of Alzheimer's Society of Ireland 2020. "Information for Families - Activities in the Home: Life Story Book Memory/Conversation Box Sorting and Tidying."
https://alzheimer.ie/wp-content/uploads/2020/03/C4B-Life-Story-Book-at-home_V3.pdf
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Impact of life story work on person-centred care in long-term care: supports self-esteem, empowerment (increased sense of control, opportunities for reciprocity), have a positive effect on individual outcomes (anxiety, depression, agitation), mood and behavior.
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Stories shared between two people is an integral part of any relationship. This shared history is gradually lost for PLWD. Life story helps preserve memories, filled with photos from the past, and help regain a sense of belonging.
@tonyhusband1 will be shining on through his legacy and all our initiatives for dementia moving forwrd
Whilst no longer physically here he is very active in our hearts minds and art
What a lovely tribute piece by Marc Astley Editor of #ExeterTomorrow
Thank you 💜
@bethyb1886 Hi Beth 👋😘
@NicolaP321 @meetmacintyre @HealthLD @bethyb1886 @TheWags2023 Amazing news, Jess, and so well deserved! Your work on our Loss and Bereavement course with @NicolaP321 and @bethyb1886 makes it so special 💜
Super proud of my work partner Jess this evening for being nominated for an award for the wonderful work Jess does to support people to be able to take about loss and bereavement #ProudToWorkInSocialCare @meetmacintyre @HealthLD @bethyb1886 @TheWags2023 💜
I posted my blogpost earlier today about the direction of travel in English policy during which my own mum loved and died. I remember @bethyb1886 being at the original world event many years ago.
@bethyb1886 @jenmacritchie @Artsincarehomes @tuosmusic Thanks so much Beth. Sounds fabulous and have followed. Will investigate 😊🎶🎶
@estherflubb @bethyb1886 Here's the link to blog
@estherflubb I'm not someone qualified to help in terms of your rights, but I agree with others as his wife you should have access. You DON'T cause BEHAVIOURAL PROBLEMS, the type of dementia exhibits via symptoms & they should know
This article by @bethyb1886 talks about it, maybe DM 🤗💜🤞
Proud to have our Loss and Bereavement training with @meetmacintyre featured in the CMM Training Edit 👇👇👇@bethyb1886 @NicolaP321
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Physiologically, kindness can positively change the brain by increasing serotonin + dopamine levels -> neurotransmitters produce feelings of satisfaction & well-being, light up the pleasure & reward centers of your brain. Endorphins, the body's natural painkiller (2)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Kindness is more than a behaviour. The art of kindness involves maintaining a spirit of helpfulness, being generous and considerate, and doing so without expecting anything in return (1) ~ Mayo Clinic
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Book (cont.) Exploring everything from the empathy gap to the skill of emotional regulation, Deep Kindness is perfect for anyone who believes in a kinder world and recognizes that there is a lot of work to do before we achieve it (2)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Book: Deep Kindness: A Revolutionary Guide for the Way We Think, Talk, and Act in Kindness by Houston Kraft. It pairs anecdotes with actions that can make real change in our own lives, the lives of others, and throughout the world (1)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Kindness is a superpower that can comfort in the most challenging moments. It allows us the ability to bring positive change in our lives & to others. It inspires us to spread more kindness throughout our lives.
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Kindness is empathetic, inclusive, beautiful, sees suffering, and reflects with kindness. But more importantly: it is powerful (Carien Moolman). E.g. of product design that can also be used as the same philosophy for dementia care,
@bethyb1886 @creativitycare Missed you 🙂 💜
Super kind of you to link to my Hard to Swallow blog @Dementiawho!
For my followers, do read this blog 👇🏼 a first-hand account of supporting a loved one with dysphagia. Cc: @RCSLT
In September we launched a brand new cushion with @nextofficial. 🌈
We wanted the cushion to remind the families we support, including people with #dementia, that they are loved. 💙
Spread the love in your home or treat someone else this festive season: https://www.next.co.uk/style/st462615/d84777
So important we hear from people with lived experience. Great work @PeverelCourt!
cc: @SCIE_socialcare @TLAP1 @SocialcareToday @_mark_topps @TheCaringView @Caring_Times @CareEngland @socfuture @ASCAPPG
Great to see you on the @rcpsychCCQI MSNAP meeting this morning @george_rook 😊
Are you looking for ideas for good conversation starters to prompt memories of Christmas? We’ve created some pictures, suggested objects and questions to help create a Christmas memory box and get people talking. #MeaningfulChristmasMoments http://ow.ly/FozB50LP9vh
It's been another fabulous month of working with amazing people 😊 A special shout-out to @Homeinsteaduk Norfolk - I'm still buzzing from our workshop together & your lovely feedback. I think you know you're getting it right when someone says they'd like 'More time with you!' ❤️
Totally agree! #banishthefake
I 100% agree with this from @dementiacentre - Banish the fake!!! #carehomes
“An early diagnosis and access to the right services and support can help people take control of their condition, plan for the future and live well with dementia” the Chief Medical Officer’s Report on Health in an Ageing Society says
Read the report here:
https://assets.publishing.service.gov.uk/media/65562ff2d03a8d000d07faa6/chief-medical-officers-annual-report-2023-web-accessible.pdf
The wait is finally over! 🎉 Applications for the Power of Music Fund are now open! 🎶 If you are involved with a dementia choir or other initiatives using music to support people living with dementia & their carers, apply today!🤩#PowerOfMusic @NASPTweets http://www.socialprescribingacademy.org.uk/the-power-of-music/the-power-of-music-fund
Delighted to launch our new resource 'A Manager's Guide to Arts in Care Homes' today: https://bit.ly/40QFdTE.
An issue we consider is partnership working between the care & arts sectors. Thank you @MagicMeArts, @SpitzMusic @LiveMusicNowUK @drawinglife for sharing your insights.
I’m always grateful for the lessons Naomi Feil & Teepa Snow gave us.
Sat with a lady today who was terribly sad & anxious about going home.
“Where is home?” I asked.
Within seconds we were using Google Maps to stroll down “Albert Road” & the local high street with a smile ❤️
How should we talk about #dementia?
Take a look at these NEW guidelines co produced with #DEEP members Allison, Dory, George, Gerry, Julie, Lorraine + Steve, in partnership with KYN Care Homes
https://www.kyn.co.uk/assets/files/uploads/kyn-lets-talk-about-dementia-guidelines.pdf
A good day: installing the first Listening Post from @tuosmusic to encourage music listening outside of structured music times in care homes. Some happy listeners already 🎧🎶🎚️
You are mentioned in my latest @CareChoicesLtd blog @DementiaUK @DementiaAus @DemCarersCount @alzheimerssoc
My latest blog for @CareChoicesLtd is all about changed behaviour when a person has #dementia: How it's viewed and talked about, why and how behaviour might change & what good support looks like https://www.carechoices.co.uk/supporting-changed-behaviour-when-a-person-has-dementia/ #carers
My latest blog for @CareChoicesLtd is all about changed behaviour when a person has #dementia: How it's viewed and talked about, why and how behaviour might change & what good support looks like #carers
I'm an ambassador for @AlzheimersBRACE, who fund fantastic work into dementia research, including an exciting early Alzheimer's test, Fastball, pioneered by Dr George Stothart.
Find out more about Fastball with a free online talk, Fri 24 Nov 12.30-13.30pm
❤️
It can be worrying when you start to notice a loved one’s #behaviour changing due to their #dementia - and for the person living with dementia it is likely to be even more distressing. Some tips from @bethyb1886 on how best to support them in our new #blog
Do you remember when you joined X? I do! #MyXAnniversary it’s been 6 years and the push from @bethyb1886 to join was a good one as I have made some great connections 💜#BetterTogether #ProudToWorkInSocialCare @meetmacintyre @DementiaLD @HealthLD @MacFamilies 💜
@ExeterDAA & @Training2Care join forces with Dementia Interpreters training programme around language and dementia
@CoxonGeorge @DeneezWilton @bethyb1886 @doryitsme @WendyPMitchell @LEAD_Coalition @3Uknz @ExeterCouncil @HwDevon @viclyons @AlzAuthors
@bethyb1886 Thanks Beth x
@bethyb1886 @whartonswords @george_rook @WendyPMitchell We definitely need more encouragement in the world!
💜
So honoured to be able to chat with you today @piponthecommons and talk fondly of @tonyhusband1
I just cannot believe he’s gone it really is beyond words we had so much more to do 😔
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat social isolation and change of environment. are all factors likely to call into question our identity. It is normal to compare past and present experiences/lives. (2)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat By creating a support network, transitioning care, accepting that driving is no longer a transportation option, family conflicts & challenges with social support, bereavement, managing incontinence, changes in intimacy, relationships, palliative care, safety planning (1)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat their past and present interests, explain and manage unmet needs (seen as challenging behaviours.) (2)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat Some people create new identities that aren't based on past roles, while others have an ardent desire to relive past social roles. HCPs, families must see individuals, not just an illness, give a person an appropriate social identity, design their daily life around (1)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat but the evidence does not support this hypothesis. A person's sense of identity, established by their unique characteristics, affiliations " social roles. Identity has continuity, one feels like the same person over time despite many changes in one's circumstances." (2)
@IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging #AlzChat The importance of a person's life stories, including their identity & role in society, is paramount. The feeling of belonging is a way in which humans organize themselves. A majority view dementia as a gradual erosion of identity until it disappears, (1)
@bethyb1886 Thanks so much for sharing Beth!
@bethyb1886 @suzysopenheart @KateLeeCEO @ProfRobHoward Xx